SHARE Program for Alzheimer's Disease

(SHARE Trial)

This trial aims to adapt and test a care planning program specifically for African-Americans dealing with early to moderate dementia, such as Alzheimer's. The study will compare a new, culturally tailored intervention involving counseling sessions and printed resources to the usual care, which consists of a single educational session. It seeks African-American individuals with mild to moderate dementia who live at home and experience memory loss symptoms, along with their caregivers. Participants should be able to speak and read English and feel comfortable managing early dementia symptoms.

As an unphased trial, this study offers a unique opportunity to contribute to research that could improve culturally sensitive care for dementia.

The trial information does not specify whether you need to stop taking your current medications. It's best to discuss this with the trial coordinators or your doctor.

Studies have shown that the SHARE program, designed to assist people with dementia and their caregivers in planning future care, is generally well-received. Research involving 40 caregiver and patient pairs found that structured conversations about future care were acceptable, suggesting the program is safe to use. The program includes counseling sessions and resources, making it a low-risk option. No significant negative effects have been reported from these sessions. Participants find the sessions helpful and manageable.¹²³⁴⁵

Researchers are excited about the SHARE Program for Alzheimer's Disease because it offers a fresh approach to dyadic care planning, focusing on both people living with dementia (PLWD) and their caregivers (CGs) together. Unlike standard treatments that mostly concentrate on medication management, the SHARE intervention provides a series of personalized sessions over 8-10 weeks that are culturally adapted and curriculum-guided. This method not only aims to improve communication and planning between PLWDs and CGs but also emphasizes emotional support and practical strategies. By involving both parties in the care process, the program has the potential to significantly enhance their quality of life and care experience, which is a promising step forward in Alzheimer's management.

Research has shown that programs like the SHARE Dyadic Intervention, which participants in this trial may receive, involve both individuals with early to moderate dementia and their caregivers and can be helpful. A review of several studies found that these programs can improve communication and planning for future care. By focusing on joint decision-making and providing guidance, participants often feel more prepared and supported. Those who have participated in these programs reported feeling better emotionally and having a clearer understanding of their care options. This approach helps both the person with dementia and their caregiver manage the challenges of the condition together.²⁶⁷⁸⁹