Guided Conversations for Bereaved Parents
What You Need to Know Before You Apply
What is the purpose of this trial?
This trial explores whether video call conversations about changes in hopes can benefit bereaved parents and learners at a children's cancer center. The study includes guided discussions using a Discussion Guide and reflection exercises with a Post-session Reflection Exercise to determine if these interactions offer support and understanding. Bereaved parents who have lost a child to cancer and are willing to share their experiences may be suitable for this trial. As an unphased trial, it offers participants a unique opportunity to contribute to understanding and enhancing support for bereaved families.
Do I have to stop taking my current medications for the trial?
The trial information does not specify whether you need to stop taking your current medications.
What prior data suggests that this protocol is safe for participants?
Research has shown that guided conversations, like those in this study, are generally safe. Several studies have examined how parents who have lost a child perceive support and communication in these settings. For instance, one study found that involving bereaved parents in research and support activities can be helpful without causing harm. These conversations aim to provide support and understanding, assisting with the grieving process.
No specific negative effects or safety issues have been reported in similar settings. The focus remains on creating a supportive environment, which participants generally find comfortable. Since this trial involves discussions and reflection exercises, it is unlikely to pose any physical risks. The main goal is to offer emotional support through guided conversations, which are usually considered safe and beneficial for those involved.12345Why are researchers excited about this trial?
Researchers are excited about the Guided Conversations for Bereaved Parents trial because it offers a fresh approach to helping bereaved parents navigate their grief. Unlike traditional therapy sessions or support groups, this trial uses a structured Discussion Guide and Post-session Reflection Exercise, both of which provide a unique framework to facilitate meaningful conversations between bereaved parents and healthcare providers. This method allows parents to share their experiences and insights in a supportive environment, potentially offering more personalized and impactful support. The involvement of bereaved parents as facilitators also brings a peer-support element that's not typically present in standard grief counseling, making it a promising new approach for emotional healing.
What evidence suggests that this educational intervention is effective for bereaved parents?
This trial will evaluate the effectiveness of guided conversations and post-session reflection exercises for bereaved parents. Research has shown that guided conversations can assist parents who have lost a child. Studies have found that these discussions allow parents to express their feelings and share experiences, aiding in their grief management. For instance, one study found that parents remembered conversations with empathy and personal sharing as positive experiences. Another study emphasized how talking can support parents in coping with their loss. Additionally, reflecting on these sessions afterward has been reported to boost social support and increase parents' confidence, giving them a sense of control over their grief. These findings suggest that structured discussions and reflections can be valuable in helping parents through their bereavement journey.678910
Who Is on the Research Team?
Brittany Cowfer, MD
Principal Investigator
St. Jude Children's Research Hospital
Are You a Good Fit for This Trial?
This trial is for parents who have lost a child to cancer and are willing to talk about their experiences in video calls. Participants should be comfortable sharing how their hopes changed during their child's illness.Inclusion Criteria
Exclusion Criteria
Timeline for a Trial Participant
Screening
Participants are screened for eligibility to participate in the trial
Educational Intervention
Virtual conversations about hope between bereaved parent advisors and learners, including pre-intervention surveys and post-session reflections
Follow-up
Participants engage in written reflections and complete post-intervention surveys to assess impact
Debrief Sessions
Quarterly debrief sessions for learners and bereaved parent advisors to discuss experiences and impact
What Are the Treatments Tested in This Trial?
Interventions
- Discussion Guide
- Post-session Reflection Exercise
Trial Overview
The study tests if guided video call conversations and reflection exercises with bereaved parents can help understand changes in hope during the cancer journey. Sessions use a discussion guide and follow-up reflections.
How Is the Trial Designed?
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Treatment groups
Experimental Treatment
Intervention Participants: Students, observers, trainees, and newly hired clinicians ≥18 years old participating in or observing clinical care at St. Jude Children's Research Hospital, and willing to participate in the virtual intervention and associated study activities as learners. Intervention Facilitators: Bereaved parents ≥ 18 years old screened and cleared to volunteer as advisers with St. Jude Children's Research Hospital and willing to participate in the virtual intervention and associated study activities as a facilitator.
Find a Clinic Near You
Who Is Running the Clinical Trial?
St. Jude Children's Research Hospital
Lead Sponsor
Citations
A qualitative study of bereaved parents and healthcare ... - PMC
This study aimed to explore how bereaved parents and professionals experienced verbal and non-verbal communication during perinatal loss.
2.
researchgate.net
researchgate.net/publication/283682907_Bereaved_Parents'_Strategies_and_Reactions_When_Supporting_Their_Surviving_Children(PDF) Bereaved Parents' Strategies and Reactions When ...
The results from 11 in-depth interviews outline bereaved parents' support strategies (e.g., direct conversation, concealment, sharing space and ...
The grief and communication family support intervention
This study aimed to evaluate intervention fidelity and explore participants' experiences and potential outcomes after participating in the intervention.
4.
digitalcommons.unomaha.edu
digitalcommons.unomaha.edu/cgi/viewcontent.cgi?article=1072&context=commfacpubBereaved Parents' Experiences of Supportive and ...
Abstract: This study examines bereaved parents' experiences of supportive and unsupportive communication using the optimal matching model of stress and ...
5.
adoptuskids.org
adoptuskids.org/_assets/files/AUSK/Publications/understanding-parental-grief-and-loss-web508.pdfDiscussion Guide: Understanding Parental Grief and Loss
This guide is designed to help parents leading support groups facilitate a conversation with foster and adoptive parents and kinship caregivers
What is good grief support? Exploring the actors and actions ...
This study assessed bereaved individuals' satisfaction of social support in traumatic grief, using four categories of social support as a framework.
7.
grievingstudents.org
grievingstudents.org/wp-content/uploads/2016/05/School_Group_Best_Practices.pdfBest Practices for School-Based Support Groups for ...
Below are evidence-based models and principles to guide your grief support group, based on theories applicable to all group settings. Tuckman's Group Theory.
8.
europeanjournalofmidwifery.eu
europeanjournalofmidwifery.eu/A-qualitative-study-of-bereaved-parents-and-healthcare-professionals-on-perinatal,194159,0,2.htmlA qualitative study of bereaved parents and healthcare ...
This study aimed to explore how bereaved parents and professionals experienced verbal and non-verbal communication during perinatal loss.
Community Guide for Postvention Response
Responding to this type of loss in a safe, supportive, and coordinated way, a process known as postvention, helps mitigate this risk and is a vital part of any ...
Loss in the family – A reflection on how schools can ...
The death of a parent often leads to an acute crisis in the family, and studies have revealed a significant increase in psychological problems ...
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